Rhode Island Breast Cancer Coalition is the State's only Breast Cancer ADVOCACY Organization
 
       

 


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Call to Action - August, 2017


The National Breast Cancer Coalition’s
2017 Legislative and Public Policy Priorities

Breast cancer is a political issue. The federal government is the largest funder of biomedical research. Laws regulate and support access to care and health care systems. Third party payors are subject to state and federal regulations. In fact, every aspect of breast cancer is touched by public policy. It is key that those who influence that policy are educated and trained and have no agenda other than to save lives, and to end breast cancer.

To ensure this, NBCC informs, trains and directs patients and others in effective advocacy efforts. Nationwide, the women and men we have trained are shaping breast cancer public policy by participating in legislative, scientific and regulatory decisions; promoting critical analysis of breast cancer information and media coverage; and actively working to change all systems that impact our Breast Cancer Deadline 2020® mission to know how to end breast cancer by January 1, 2020.

National Breast Cancer Coalition

2017 Legislative and Public Policy Priorities


PRIORITY #1:
$150 Million for the Department of Defense (DOD) Breast Cancer Research Program (BCRP) for FY2018: 
As a result of NBCC’s grassroots advocacy, the DOD BCRP was created in 1992 to “eradicate breast cancer by funding innovative, high-impact research through a partnership of scientists and consumers.”  The DOD BCRP is widely viewed as an innovative, unique, and efficient medical research model which has proven to be accountable to the public and has produced extraordinary results.  NBCC seeks continued funding for this successful program.

PRIORITY #2   
Guaranteed Access to Quality Care for All:
 Ensuring access to quality, evidence-based health care has been a top priority of NBCC for many years and is an essential component of Breast Cancer Deadline 2020®. Prior to the passage of the Affordable Care Act (ACA), the NBCC grassroots Board of Directors approved a Framework for a Health Care System Guaranteeing Access to Quality Health Care for All which built on NBCC’s Principles for Quality Care. In 2010, NBCC endorsed and advocated for the passage and implementation of ACA which marked important steps forward in access to quality health care for individuals with, and at risk of, breast cancer. The Coalition opposes and will work to defeat any and all efforts to repeal the ACA or replace it with something less expansive. In addition, NBCC remains committed to protecting vital existing programs such as the Medicaid Breast and Cervical Cancer Treatment Program (Medicaid BCCTP) and critically examining any proposed changes to programs such as Medicare in order to determine the impact they would have on this population.


PRIORITY #3
 
Ensuring the Participation of Educated Patient Advocates in all Levels of Health Care Decision Making: NBCC continues to work to ensure that educated patient advocates who represent a constituency,  have a meaningful “seat at the table” in all levels of health care decision making which affects their lives.  


 

 

Dear Friends,

Welcome to the Rhode Island Breast Cancer Coalition's home on the web. The information posted here has been gathered to help you become better informed about the messages heard from the many diversified voices in the world of breast cancer. We also hope that we can encourage you to become an active participant in the movement for breast cancer advocacy.

The RI Breast Cancer Coalition advocates are committed to supporting and promoting the Breast Cancer Deadline 2020 Campaign initiated by the National Breast Cancer Coalition.  We believe this Deadline can be met and we are fully engaged in its efforts to identify a vaccine to prevent breast cancer and research to identify why and how the disease spreads to other organs causing metastatic disease which women ultimately causes a woman’s death.

Integral to the success of Breast Cancer Deadline 2020 is a change in the conversation about breast cancer. Media, advocates, survivors, researchers, policy makers and others must be educated in order to shift the essential public dialogue about breast cancer from awareness and mammography to prevention and saving lives.

Leaders in government, industry and all areas are being urged to embrace the Deadline with courage and conviction and make ending breast cancer a priority.  Members of the RI Breast Cancer Coalition are interacting with our Congressional  Delegation in Washington DC to push for appropriate policies and discussions about breast cancer. Strategies include a petition drive, the design of legislation that compliments the campaign and advocacy efforts that secure declarations of support from policy leaders.

The Accelerating the End of Breast Cancer Act has been introduced in the US Senate by Sen.  Sheldon Whitehouse and in the House of Representatives as well.

One of the primary objectives of Breast Cancer Deadline 10120 is to facilitate collaboration in all areas of research and minimize unnecessary competition.  NBCC is leading an effort to encourage all stakeholders involved in research, particularly the scientific community, to work together to create synergy and develop partnerships to advance the pace if research.  

Breast Cancer Deadline 2020 has one goal: By January 1, 2020, we must understand how to prevent people from getting breast cancer in the first place and how to prevent them from dying from the disease.  Breast cancer advocates are engaged throughout the process to make certain that location, economic status, and societal factors are not barriers to access. NBCC provides survivors and other advocates the education, tools, training and actions that enable us to take leadership roles in clinical, scientific, policy and legislative decision making that affects breast cancer research and public policy.

We invite YOU to become a trained breast cancer advocate and participate in ending this disease for the next generation.  Ribbons, races and walks will never end breast cancer.  WANTED: Assertive, committed, individuals not satisfied with the status quo and willing to push the envelope and demand actions to end breast cancer by the end of the decade.    

Thank you,
    Rhode Island Breast Cancer Coalition
                    and
    National Breast Cancer Coalition


 

 

 


 

 



 

 

 

New Chart Provides
Comparison of ACA and AHCA

 
 

 


SERVPRO of Providence Donates to
Rhode Island Breast Cancer Coalition

 
     
     
 


July 2017
Project LEAD® Institute


Applications for Advocates
Now Being Accepted

Click here for more details

     
     
 

Weight loss program for women who have had breast cancer

Location: The Miriam Hospital
Time: This program will have eight 45 minute meetings over a 12 week period.
When: groups start every couple of months.
Cost: $120.00.
Contact: Mary M. Flynn, PhD, RD, LDN
401.793.4707
Mary_Flynn@brown.edu

Click here for more details
 
     

Breakthrough Designation

Breast Cancer Drug Receives Breakthrough Designation from
FDA - read more.

     
  

BreastCancerDeadline2020.org

The National Breast Cancer Coalition is putting a deadline on awareness. Join the action to end breast cancer by 2020. Click here to view a video.

  
 
  


Affordable Health Care Act

Read about the impact on Rhode Island. Click here.

 

  
 
  


At the heart of it I would give you
The threads of all that made this cloth….
The blaze of the sugar maples in late afternoon, fallen leaves, paling, turning brown,crackling around our ankles as we scuffed long.

The smell of fires in the Saturday dusk,
Our fathers in plaid woolen shirts lean on
their rakes…contemplating their kingdoms with satisfied eyes.
Behind steamy kitchen windows
our mothers, benevolent in homemade shirtwaists and aprons stand watch.

Come home when the lamps come on.

We learned to watch for the softening of
the day,
The easing into dark.
Just at the hour when edges fade,
the streetlamps would send us home.

An original poem by Joy Veaudry, RIBCC member and trained breast cancer advocate. Joy died after a long struggle with her diagnosis and metastatic disease. She had 2 books of poetry published. This reading is from her book "A Clear Path Home".

 

  
 
 
   

 

 

 

     
 
 
  


A Challenge for You:
Changing the Conversation

Click Here to Learn More

  
 
 
 
 
     

 

           
 
Rhode Island Breast Cancer Coalition (RIBCC)
PO Box 578 Coventry, RI 02816   |   Toll-free 800-216-1040